Finding out I have a neurological disorder:

Finding out I have a neurological disorder:

This is something I have been struggling to come to terms with and with my health anxiety at a high I tried as hard as I could not to research my disorder but I decided it was in my best interest to know what I’m battling. So basically, a few months ago I found out I have functional neurological disorder. It’s been quite upsetting to accept but I guess it’s a part of me now and something I just have to take in whether I want to or not.

How I found out I have functional neurological disorder:

To cut a long story short, I had INTENSE shoulder pain radiating from my arm to my chest. I put of going to the doctors due to trying to over come my health anxiety and i was sent to the doctors by counsellor who could see i was getting breathless from the pain. When i got there my arm had started to become numb and i thought it was just a seriously intense pulled muscle. They where worried and sent me immediately to the hospital. When i arrived i had numerous neurological work ups, bloods and x-rays and a ct scan. They believed i had a stroke but after the ct scan couldn’t pick up anything i was sent home with very strong painkillers and told to come back if it got no better. A few days later i lost function completely in the arm. I ignored it but then i got so much pain in my chest i had a asthma attack from struggling to breath. I called 111 where they where going to send a ambulance out again worrying i’d had a stroke. Instead we drove to a and e after waiting and cancelled the ambulance. After being in a and e again they did more extensive checks this time and after being poked and prodded by around 8 different people we came to a conclusion i needed more tests. The stroke team came down this time and could see i had lost function and worked out my reflexes are less down one side of body and on that side i couldn’t feel as much and was a lot weaker than my other side. I was sent for a MRI scan and sent to the stroke ward. They discovered after more testing that i have functional neurological disorder. I was discharged with not much information other then a website and a letter confirming to my doctor i have functional neurological disorder.

What is functional neurological disorder?

Basically suffers with functional neurological disorder have problems with their nervous systems functioning. It effects the signals by brain wants to send to my body parts. The body wants to communicate something and cannot. The messages get confused and this causes the body to be confused. The pain is real. The symptoms are real. The symptoms are very similar to those who are experiencing/have experienced a stroke and very similar to those suffering other neurological problems such as MS.

The symptoms of functional neurological disorder:

  • Non epileptic seizures.
  • numbness.
  • Inability to use a part of the body.
  • Conversion disorder.
  • Weak limbs.
  • Confusion.
  • Fatigue.
  • Paralysis.
  • Speech issues.
  • Numbness/ tingling feelings.
  • Pain.
  • Vision disturbance.
  • Tremors.
  • Spasms.
  • Irritable bowel and increased urination.

Causes of functional neurological disorder:

  • Childhood trauma.
  • Mental health issues.
  • Chronic pain (yay endometriosis).
  • Stress

Is there a cure?

In short no. Study’s have shown that Physiotherapy and counselling can help individuals but it is not completely effective. Pain relief can help but again does not cure and you could become addicted from taking pain killers to frequently.

Will I get worse?

At the moment I have no idea what will happen. Some days are better then others with the pain. I’m normally okay and then after some sort of stress or over working myself I’m in pain again. For now I try not to think of the future and think of today. I’m grateful for my family and friends and my health I have today. I won’t worry about the future until I’m firmly in it.

As always thanks for reading love Charlie x