My endometriosis #wombstories

My endometriosis #wombstories

I have endometriosis. If you’ve followed and read my blog posts over the year you will be more than aware of the fact that i have endometriosis and it rules my life at times. One day i can feel completely fine and go about my life as normal then the next moment my stomachs swollen like a balloon, i am in intense pain and i am crippled by it sometimes even hospitalised. But it’s a weird thing being a endometriosis sufferer, i used to feel so alone but now i know i am not alone. Since starting my blog i have made so many connections with so many beautiful people who also suffer with endo. We all know what it is like to be sick but not look sick. We know each others struggles and go through it together. Like some sort of badass period gang. There is a reason they call us endo warriors. It is because we get up and start the day despite at times feeling like we are dying. It’s that a lot of us are there to give support and talk about what we are going through in the hope that it helps someone else.

Did you know that 1 in ten woman can be suffering from endometriosis and that it can take around 8 years for a diagnosis?

What is endometriosis?

Endometriosis or endo as many of us call it is when the material of your uterus grows elsewhere in your body. Causing internal bleeding, scaring and in many cases damage to organs. The only way to know how severe or diagnose is through surgery. It is barely ever picked up on ultrasounds and you have to be extraordinarily lucky to have it found in other ways. There is also no cure for endo. You can have patches of it burned of but it just grows back like weeds and sometimes it comes back worse.

What are the symptoms?

  • Pain, intense pain on periods.
  • Heavy bleeding.
  • Nausea and sickness.
  • Constipation or diarrhoea when ovulating or on period
  • Pain when peeing or pooing on period or ovulating.
  • Difficulty getting pregnant.
  • Exhaustion.
  • Back pain and pelvic pain.
  • Pain during or after sex.
  • Lots more.

My story.

Growing up i found periods uncomfortable but it wasn’t until my twenties i started to have more intense periods. I would also get very frequent urine infections which would burn. I’d sometimes live on the toilet. Once i had elijah i found out i had endometriosis through my c section. Which in turn caused my endometriosis to get way worse and start presenting severe pain more than ever before. As I started to fuse back together my endo grew with it infesting my insides and destroying my life. Every month on the return of my periods i started to notice extreme stabbing pain in my side. Like i had a knife inside of me. I would also always describe it as having a burning hot ice cream scoop inside of me scooping away at my organs and pulling at the flesh. I would be exhausted, bed bound and in so much pain i would cry on the floor. If you’re a endo sufferer you also know that the pain your in is determined by how low to the floor you get. If you can stand it’s a okay day. If your laying on your stomach or back in pain on the middle of the bathroom or living room floor it’s pretty unbearable.

I also loose my appetite for days and feel sick the whole time. I bloat and look pregnant whilst also suffering intense bowel and urinating issues. I have hot sweats and cant do anything to soothe the pain. I spend the week of my period attached to a tens machine, cooling pads or in tropical temperatures with a hot water bottle resting on my stomach. The more severe the flare the more it causes me to feel so week I feel faint and unable to concentrate. The worse thing is when I feel shaky and unable to function .

I was one of the lucky ones who had a diagnosis. Only on a accidental find. But being told i had endometriosis wasn’t the end. Even though i had a diagnosis doctors would still make me believe it was in my head i would turn up to their surgery in so much pain i couldn’t stand up properly hunched over and i would be made to think it was all in my head. I’d be prodded over and over and cry in pain as touched where it hurt. Over and over i would attend a and e begging for help thinking i was going to die. Turned back to my gp after a day of sitting upright crying or writing in pain needing the floor or a bed. I would Rarely be Admitted to gynaecology where after having scans seeing cysts I’d be sent home later that day when i could barely stand and had been drugged up to the nines.

The medication never really helps sure it sometimes takes away some of the pain but a lot of the time it barely scratches the surfaces. I’ve often had the strongest medications you can have and still lay writing in pain on the floor crying pressing into my stomach in the hope of stopping the tsunami of cramps and pain. Many times i have had to give up going out because i am bleeding so heavy. I’ve leaked in public and been forced into adult nappies. I become anaemic every month because i loose so much blood and have massive clots. I run on empty feeling faint because there is no option when people can’t see your problem but to get up and carry on. The condition also messes with my hormones causing mood swings and extreme depression and lets not even go there with the beautiful spots i inherit from aunt flo visiting. I often feel like a failure as a mother and wife because sometimes i just don’t have the energy. Sometimes i struggle to get through the day and sometimes im laying on the floor crying like some crazy woman. I know often i should go to hospital when it gets overly bad but with the little understanding of doctors in the hospital i am treated terribly and would rather writhe in pain at home just praying that this isn’t it, that i’m not actually dying this time.

I also find that i am starting to get issues with ovulating more now. I cramp and hurt and have many of the same symptoms as when i bleed but without the blood. It wasn’t enough to take a week of my month but now it is two weeks.My doctors all push for me to have another surgery to look at how bad my endo is but i refuse as i cannot bring myself to go under again after my traumatic birth. I also think what would be the point? There is no cure. It will grow back. Whats the point in more scars and more pain. So I spend my days engulfed in the fire that burns its way through me.

However in our darkest hours there is unity. I have joined many endo support groups where we all give each other love, support and advice where i don’t feel like such a freak. I talk to fellow bloggers and people i follow or follow me about the struggles of our endo flares. It makes me not feel so alone. It has also enabled me to learn about more related symptoms and that i can relate other issues to my endo.

I talk about my endometriosis not because i want sympathy but because i want understanding. I want people to understand what i am going through. I want awareness for my people and i also want to be able to help others. i talk about endo in the hope that the girl sitting on the toilet in agony knows that it is not normal to have this much pain. I talk about it in the hope of more seeking help and also being there to help. I talk for everyone. Just because we do not look sick does not mean we are not sick. Chronic pain is real and it is hard and honestly every day i wish it would go away but it never will no matter how hard i wish or how many heat packs i put on my stomach and back,

If you or anyone else have similar symptoms then i have please speak to your gp. It may be that help you need. My messages are always open and you can always dm me on my instagram @lifewiththehazelwoods or email or comment here.

Thanks for reading! Charlie x

Messy play in partnership with Hartley’s fruit !

Messy play in partnership with Hartley’s fruit !

Hi all as we reach day 2636526 in lock down we’ve been thinking of ways to keep our little one busy and thought why don’t we share those ideas with you. The lovely people at Hartley’s fruit gifted us lots of jelly to share with others what we get up to with jelly!

I know what your thinking jelly? That’s just for eating? Well yeah it’s for eating BUT you can also play with it. You can hide things in it and explore the texture as you try to fish bits out of it! SO if you’re looking for a cheep and easy activity then look no further!

All you need is jelly, you can buy Hartley’s jelly in most supermarkets and corner shops as well as online! Then you can get inventive. I like to set a theme today I used Elijahs little dinosaurs and we had a dinosaur theme. We have previously done jungle animals, the lion king theme and we’ve even used fruit too! If your child is still at age where everything is in the mouth I suggest bigger toys they can’t choke on or cut up fruit!

How to make: Simply follow the manufacturer’s instructions and when it’s starting to cool out the fruit or toys in. Then when it is completely cool put in the fridge to set for a few hours I suggest a minimum of three hours!

Now the fun part! Get it out and put some old clothes on and get ready to get messy! Get some tools out if you wish, I got a spoon but we’ve previously used whisks, chopsticks and lots more to squish into the jelly.

While your child plays talk to them while they explore. Talk to them about the texture and ask them questions. Ask if it’s squishy? Ask if it’s cold. Ask how it feels in their hands. Talk about how it is cold and how it is wobbly. Talk about what your using to get the toys/fruit out. Count how many objects you remove from the jelly and talk about if they’re sticky or not.

We enjoy getting bigger toys and splashing them in the jelly also! It’s a great play idea which you don’t have to worry about them eating the product!

We find this a super fun idea we play with other children when they come round and can’t wait to do more play with others after lockdown!

To clean up, once all the toys have been removed allow them to eat some jelly. If you’ve made to much save for later in the fridge. To finish just simply wash up as normal and add the toys and utensils to the washing up pile. Remove dirty clothes and wash hands it’s that simple.

Have fun and enjoy yourself! Let’s play with our food that little bit more! Thanks again to Hartley’s for supporting our play today! (The jelly used was gifted).

For more play ideas be sure to check my Instagram play idea highlights where I’ll be adding more as we play! Follow: @lifewiththehazelwoods and tag me and Hartley’s in any jelly play you do!

Thanks Charlie!

Learning resources for toddlers.

Learning resources for toddlers.

Trying to expand your toddlers mind and teach them skills at the same time can be difficult, but there are resources out there you can use to help. Here are a few items i have used and found effective in teaching my son that might help other parents and toddlers stuck in a rut. If anyone else has anything they can recommend do please get in touch with a comment or check out my instagram @lifewiththehazelwoods and send me a dm there.

First up flash cards. I cannot rate flashcards enough because they are such a brilliant tool for learning. Remember revising for tests and you made flash cards? Well they work the same for toddlers. They’re brightly coloured and have pictures. They have the word under so you can teach your toddler the word for the photo which eventually they will learn with daily practice. Everyday we’ve used these since a little before his first birthday. Hes learnt a lot of animal names, foods, objects,weather and more. He can now basically say a whole pack of words now which makes us insanely proud. We have several packs which i have brought which Elijah loves doing you can get themed or basic first words, we have some ones that show counting objects for when hes older as well.

Puzzles are great too. We have quite a few types. We have some which are wooden boards where you take the shapes away and put them back in which are quite easy to do but teaches shape sorting. We also have vehicle, animal and letter ones to teach him words too. We have words to words to object animals. We have wooden puzzles also where we match the body parts. Puzzles are so good for making your child learn more, gain more skills and also strengthens their muscles using their motor skills. It also helps their memory including muscle memory.

Lacing beads. This teaches your child about colours and shapes. This also teaches how to thread through beads into the lace and counting as you do it. Teaches hand eye coordination and muscle memory again. This is also one of the things they access where children are too to see how they’re able to use their joints.

Arts and crafts products.Colouring books and crayons, Jumbo and thin crayons can be great for the wrists and finger development. We use it to teach colours and patterns and try to get him to copy us when we do shapes. We love painting and exploring patterns and objects and how we use things to paint. We do themed painting and use objects we find such as toys, objects from the outside or pasta. We love doing stickers which Elijah loves them and sticking them on the paper or on things.

Word books, i cannot stress how important reading is to children. They are sponges from when they are born. We have read to elijah since he was in my tummy and we make a effort to read atleast 4 books a day together. Word books with pictures and words are really good because they teach them the word for things. Elijah was so proud of himself when hes learn all the words in a book and would bring them to show us all day long.

Play dough. Teaching your child textures, making things and just using their hands and objects are a great tool to use. They come with good play sets too so as they get older you can make them explore more play. Like a dentist set, beach set, food making set. Playing together is lovely too.

Bricks, counting and balance all come into this. They have fun building towers and learning balance. You can also use them to count.

Magnetic fish teaches hand eye communication and team work.

Food is probably the best one! Teaching them too cook is such a fun experience and lots of messy play! Put food colouring in cooked spaghetti and let them go wild! Bake cakes and shape cookies! Colour pasta shells and rice for necklaces and arts and crafts activities!

The possibility’s are endless, just enjoy learning and having fun together!